In this video, I share one of my personal experiences as a hospice volunteer which involves the often overlooked challenges many families face when caring for a loved one at the end of life.

My hope is that by opening up this conversation about death and dying – a topic many find uncomfortable – we can work towards creating more awareness and developing better support programs for those in need.

Please join me in this critical dialogue. Let’s work together to make our world a more compassionate place for those facing their end-of-life journey and their loved ones.

“Let’s not forget the loved ones, who are suddenly left alone and burdened with unfamiliar care demands, along with their fear of the unknown an dindescribable grief. Who care for and about the care giver?”
Christoper Kerr, MD, PhD. Death is but a Dream

Transcription

I’ve been waiting to put on makeup and do my hair for all of you lovely people and make this video but I actually decided that waiting to do things is part of the problem. We know in America especially no one wants to talk about death and dying and I’m here to tell you that it’s such a large issue. I was with my hospice patient yesterday, and she is so cute and so sweet, and she and her husband have been married a long time, they’re both old. He is her primary caregiver, that is how it goes. A lot of times people are only able to afford what medicare covers, so they are unable to afford for a nurse to come in and help out with her 24/7, and this poor man is absolutely exhausted. He’s elderly, he’s having to take pain medication because his back hurts from picking her up to use the bathroom in the middle of the night, and I just wanted to bring some awareness to this. Most of the care that is done for a person that is at end-of-life, is done by their family. And oftentimes, it’s done by the spouse, and we have a lot of elderly people in our population and they either don’t have children or the children don’t want to help, so these people are really suffering. It’s really unfortunate and it really breaks my heart. Because I am a Hospice volunteer, I am unable to do actual Death Doula work for them, I’m unable to assist in the middle of the night or any of that, and that’s per Medicare. Those are the rules, and though I love love love my patient, I cannot break the law and go help her in the middle of the night and it really sucks. I really believe that if we took the time as a population to talk about death and dying and create programs for people that need assistance our world would be such a better place, and I’m gonna look into doing that. If not me, who’s going to do it? Have a great day, guys.

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